Beware of Flying Cakes…

There are many reasons I am thankful my husband is so patient with my fibromyalgia.  Just this week he sat and rubbed bio-freeze on my shoulders while I cried through a flare I wasn’t expecting.  He’s always patient with the pain, the fog, everything that comes along with having fibro.

Thank God he helps me in one other area…cooking!

I can’t cook.  I don’t get it, and to be honest there is nothing about it that I really enjoy.  I may be using fibromyalgia as an excuse, but sometimes I think my fog gets in the way of me really being able to do it well.  When I try to read a recipe my fog takes over and the directions start to swim all over the page.  My anxiety gets the best of me and I always worry that the meat hasn’t cooked long enough or I figure it’s not going to be good and just give up half way through a meal. 

Ok, Ok, even before the fibro I had trouble with cooking.  In fact, the one time I did bake my hubby a birthday cake I ended up dropping it on the floor.  It was a mad dash between me and two hungry dogs I was trying to protect from munching up chocolate cake that flew all over the kitchen floor.

Flying cakes aside, it has been even harder since the fibro.  I know it’s because I can’t seem to follow directions to save my life.  I know when i read directions, or if someone is reading directions to me, my eyes and mind glaze over.  In my head I’m screaming at myself “PAY ATTENTION, STUPID!”  But no matter how hard I try to concentrate, I just can’t seem to do it.  I think it’s one of the reasons I love Zumba so much.  There are a lot of steps to remember, but for some reason with muscle memory and the music, I always seem to remember.  Maybe I should trying cooking along with some Zumba songs and see what happens!  Of course, I could get over-excited by the music and there would be more food flying!

Needless to say, the hubby has graciously accepted the responsibility of cooking dinner almost every night.  It’s been especially great since I started to watch my diet.  Eating right does not allow for “easy” meals.  Processed foods are pretty much completely out of our diets.  We went from Fish sticks to fresh fish, frozen stir fry kits loaded with cheese to making our own with fresh veggies and low sodium soy sauce.  I have to admit, everything has tasted so much better and I have had almost 100 percent relief from IBS.  I’m so glad my hubby embraced the food changes and took over the kitchen!  Don’t know what I’d do without him!

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Because I Can’t Keep a Secret…

 

Being an active person with fibromyalgia has so many benefits. I feel like I can manage a lot of my pain and flares when I keep moving. I can’t thank God enough for blessing me with a love for exercise.

However, I’ve also been reminded (a lot it seems in the last few weeks) that being an active person with fibromyalgia comes with downfalls. I have had many people tell me there was no way I could possibly have it with as active as I am. Or some people assume I am on multiple pain killers to be able to do what I do. I was recently told after a recent Zumba class that I need to stop “going, going, going.” While I admit after a muscle pull in my butt I had to learn how to modify my workouts a little. I also learned (even if it was the hard way) what my body can’t do, and that’s perfectly OK with me. However, when I was told this, I still drove home in tears and cried a little to my hubby and my best friend.

I know my friends/family worry and I LOVE them for that, but I hate feeling different. I hate feeling like I may not get to do what everyone else gets to do. I hate that people worry about me so much (even though I know they only do because they care about me).

 After talking with my hubby and my workout P.I.C. they both had the same advice. They told me that people probably aren’t used to people with fibromyalgia pushing themselves so hard, or not being afraid to push. They both told me that they know when I don’t feel good I rest and when I feel good I take advantage of it. They told me to be more open to people who seem to be worrying and if they seem to be concerned that I’m doing too much to let them know that I’m feeling good that day and while I feel good, I’m going to keep moving.

I know I have a lot of things going on in my head when it comes to me being active. Like I said, I don’t want to feel different. I don’t want to feel “disabled” in any way. And most of all, I’m thirty, and I don’t want to feel old. I know I’m the only person who can work through these mental challenges with fibro, but as long as I have motivation, I’m going with it.

I feel like I’ve accomplished so much in the last few years. I’ve been diagnosed with fibro, and stared it down, and keep fighting it every single day. I have not been afraid to personally find what I need to manage this terrible condition, and I think I’m doing pretty good so far.

I’ve hit 115 pounds off on my weight loss which is way beyond anything I thought I would do. Now I’ve decided there is another goal I want to meet. It’s a weight loss goal, a fitness goal, and also a way to prove to myself that I can do this, even with fibromyalgia.

On July 30th, I am going to become a certified Zumba instructor. I had initially said I was not going to say anything until I completed it, but I’ve already found in the last week that trying to do this for over a month would be REALLY hard. I had been thinking about it for awhile, and then my Zumba buddy got certified and I didn’t want it to look like I was doing it because she did (love ya Vern!). I got to thinking about it though, and there’s no better time than the present.

I love everything about Zumba. I love the music, the crowds, the clothes, and how much fun everyone seems to have when they do it. I think 10 years from now if I didn’t do it I would regret I didn’t do it when I was 30 and feeling good. I don’t know that I’ll ever even get to teach a class. I first want to do it for my fitness/fibro goals and for the 265 pound person I once was. If I get to teach along the way, that’s just an added perk!

I would like to ultimately get certified in Zumba Gold, which focuses on a less intense class that could be taught to seniors. I’ve worked in nursing homes for almost 6 years now in the Business Office and have such a love for the residents. I love the thought of someday being able to teach them Zumba. It may take me awhile to get certified in this area, but I would love to be able to do Zumba with some residents some day.

I’m so excited to go to the training. I think it will be a blast!

Day-o, Day-ay-ay-o….

In one of my earliest blogs I mentioned a drug that “shall remain nameless.”  Actually, I believe I said if I mentioned its name the evil drug would come back to haunt me and make me dance around the dining room table to the “Banana Boat” song like in “Beetlejuice.”

Since I have such a low opinion of this drug and this might be quite the bitch session I’ve decided to keep it light and when the drug’s name is needed, I’ve decided to sing some lyrics of the “Banana Boat” song instead. 

“ah-hem” “cough, cough”… here we go!

 

 

Dear Makers of (Day-o, Day-ay-ay-o),

I hate the commercials for your drug.  I took (Daylight come and we wan’ go home) for about six months and I feel that (Day, me say day, me say day, me say day-ay-ay-o) has stolen those six months away.   I feel that your commercials for (Work all night on a drink a’ rum) mislead patients into thinking their fibromyalgia will be cured, and that the people in your commercials don’t reflect an average day if a fibromyalgia sufferer.  (Daylight come and me wan’ go home), the wonder-drug??  I think not.

First of all, why do the people in your commercials for (Stack banana till the mornin’ come) all seem to move in slow motion?  It’s always a middle aged woman working or walking REALLY slowly with her “husband.”  Why do they always seem to have jobs most of us do not have, like baker, or fashion designer, and they’re always walking through a perfect park full of blossoming flowers. In real life, the fibromyalgia patients are probably trying to figure out how to comfortably sit behind a desk for eight hours, or trying to manage while they work on their feet all day, or they’re chasing after toddlers, who definitely DO NOT move in slow motion.  Why can’t you show a woman actually being more active than a slow walk?  Why not show a yoga class?  Or swimming?  Oh, and while we’re at it, makers of (Daylight come and me wan’ go home); I love the high heels on the women in your commercials.  I’ve taken your drug, and while there was some very minor relief from pain, it definitely doesn’t call for some stilettos, which is what you imply in your commercials for (Come, Mister tally man, tally me banana).  Oh, and why are there never men with fibromyalgia in your commercials?

While we’re on the subject of these middle aged women, I would also like to point out that they’re all very, very thin.  You only briefly mention that the most common side effects of (Daylight come and me wan’ go home) is weight gain.  And why is it when these skinny women mention they’re pain, they only ever grab their shoulders.  Why doesn’t (Come, Mister tally man, tally me banana) go into any detail that fibro hurts everywhere?  I would love to see a nice curvaceous woman grab their knee, or collar bone, or even their toe.  And did you know in one of your earliest commercials for (Daylight come and me wan’ go home) the skinny middle ager even pronounced fibromyalgia wrong? 

I’ve also noticed the women in your commercials always seem to be walking (slowly of course) and smiling, walking and smiling.  I’m pretty sure this is because (It’s six foot, seven foot, eight foot BUNCH) causes fibro fog to be so severe you can’t hold a conversation.  While the world is talking, you’re there, walking by with a goofy smile on your face because you have no idea what’s going on.  When I was taking (Daylight come and me wan’ go home) I couldn’t do my job.  I couldn’t alphabetize, I couldn’t remember meetings I had been to, I couldn’t remember names.  It was horrible.  I was not taking my life back as (Six foot , seven foot, eight foot BUNCH) claims it will help you do.

I don’t feel the warnings you have on your ad’s do any justice to what will actually happen when you try to go off of (Daylight come and me wan’ go home).  If you do have the “possible” side effects that are listed in your ad, and your doctor advises you to go off of (Day, me say day-ay-ay-o), it isn’t as simple as it sounds.  It took me almost 2 months to completely go off of (Daylight come and me wan’ go home).  I have never experienced such terrible withdrawal symptoms in my entire life.  I was addicted to (Day, me say day, me say day, me say day).  I tried to wean off as the doctor advised.  Every other day skipping a dose, and every other day was filled with headaches, diarrhea, stomach aches, and serious mood swings.  When I called my doctor for advice he stated those were normal withdrawal side effects of (Daylight come and me wan’ go home).  I had two options.  I could suffer through, or continue on the medicine.  I could not stand the thought of being addicted to (A beautiful bunch a’ ripe banana) for the rest of my life so I suffered through and got off the drug.  I couldn’t just go off of (Daylight come and me wan’ go home) cold turkey because I found out that since (Hide the deadly black tarantula) was originally used for the treatment of seizures, I ran the risk of having one if I came off too quickly, even if I have never had a seizure in my life. 

I admit, my experience might not be the same for everyone who takes (Daylight come and me wan’ go home).  I believe (It’s six foot, seven foot, eight food BUNCH) may really help some people with fibromyalgia.  However, I wish your advertisements would more honestly reflect what fibromyalgia is like.  I suggest really listening to what fibromyalgia patients would like to see in your commercials for (Daylight come and me wan’ go home).  I also think there should be more emphasis on the side effects.  Those side effects when you’re taking the drug, as well as those if you need to go off. 

Thank you for your time and attention in regards to (Six foot, seven foot, eight foot BUNCH).  Hopefully as well all learn more about fibromyalgia you can re-evaluate the impact of your ad’s for (Daylight come and me wan’ go home).

Sincerely,

Jennifer

**Now tell me next time you see one of these commercials that this song doesn’t get stuck in your head 😉

http://www.youtube.com/watch?v=AQXVHITd1N4