You’re “Big” Again!…You ran a 5K!…You May Not Have Fibro?

There are only so many emotions one person can handle in a weekend….

 

Friday Morning:  Baby A had his six month doctor apt.  SIX MONTHS! He promised me a month ago he would stop growing and stay my sweet, snuggly baby forever.  Promise. Broken.  He is now crawling…fast…after each dog, the cat, each electrical cord, every speck of dust on the floor, my feet, the chair…I thought the newborn part of having a baby was exhausting…huh…I was a fool. 

Emotions, Emotions…

Friday Afternoon:  Leave work a little early and get ready for my Rheumatologist appointment (almost two years overdue).  I ran into an old co-worker who felt the need to tell me I was “big again.” 

Emotions, Emotions, Emotions…..

Never have I ever wanted to punch an old man as badly as I did right then! It was one of those moments when you wish you had a quick, witty comeback that stings the other person, but is SO witty you just come across as sassy instead of a bitchy crazy person. 

No witty comeback here, instead I chose to first: call my husband who can always make me feel beautiful again and who also pointed out that some people only remember me as super fat and super skinny…no one seems to remember the middle…and there is/was nothing wrong with the middle.  Second:  I texted my co-worker who is always good for a quick (normally bad) joke and a few encouraging words.  She didn’t let me down and flooded my texts with jokes so bad you can’t help but laugh at them.

“Why does Peter Pan fly?…

Because he neverlands”

“Yo mama so skinny I slapped her and got a paper cut.”

“Yo mama so skinny she has to wear a belt with spandex.”

It was a reminder to feel blessed for the people I have in my life right NOW.

Emotions, Emotions…on to my Rheumatologist with a renewed smile on my face.

I went through the usual routine.  Temperature, weight (which was a risky request for that nurse after my previous encounter of the day), rate my pain level, etc.  Then I mentioned my concerns…correction…my many concerns.  I had suspected there was something “different.”  Apparently the doctor had the same suspicion.  After him asking me a million questions, he said my symptoms were no longer coinciding with my fibromyalgia diagnosis, and that I was showing signs of having an autoimmune disease.  I was told I will probably end up on long term medication.  I was told I could more kids if I wanted too, but I would be considered high risk.  I was told if it was Lupus, my organ function would need to be closely monitored.  It was a lot of information.  After my appointment I took my 9 pages of blood test orders to the hospital, confused the lab techs who asked me if my doctor wanted me to keep ANY blood in my body as they took 8 tubes, and that’s where my Friday ended. 

Emotions, Emotions…

I am waiting on blood tests to determine if I have lupus.  If that comes back clear, then he said he would treat me for psoriatic arthritis. 

To be honest, I’m not sure if I’m struggling more with a new diagnosis or the fact that fibromyalgia may not be what I’m fighting anymore.  Was I misdiagnosed from the beginning?  Did pregnancy just change things all together?  Will my symptoms suddenly fall back in line with fibromyalgia later on?  I think only time will tell on a lot of my confusion. 

I feel like I’m starting over like when I was diagnosed with fibromyalgia.  I hate the waiting game of finding out exactly what I have.  I’m cautious about researching the wrong thing. I hate not knowing, especially now that I feel “nameless” again…now that fibro may not be in the picture.

I’ve educated,  I’ve spoken up, I’ve researched, I’ve been researched, and I’ve been fighting fibro since 2008…have I been fighting the wrong thing? 

I’m not sure where my challenges start from here, but I plan to take the same approach with any autoimmune disease that I did with fibo…educated myself and live my life the fullest capacity I can. 

Emotions, Emotions…future Emotions…

On to Saturday….Yep that’s right…that was just Friday…

 

TIND24_01_00730_L TIND24_03_02454_L

 

I can finally cross something off my bucket list!  I completed my first 5K!  I did the color run here in town and had a blast.  To be perfectly honest, weeks leading up to this race I was dreading it.  I was actually mad at myself for signing up.  I started to train and then lost focus.  The weather has been beautiful and then THIS Saturday called for a high of 93 degrees and muggy. 

It was going to be miserable.

I was going to be too hot.

I was going to be slow.

I was going to have to walk the whole damn thing because I didn’t get up and train.

And then late Friday night after my emotional rollercoaster I just said “screw it.”

I ran what I could (which was more than I thought I could do) and walked when I needed to.  I laughed a lot and had a great time with my husband.  It was a fun day and a great stress reliever.  I’m so glad we did it and we’re already planning our next run.

Sunday:

Was spent cleaning, grocery shopping, napping and playing with Baby A.  Boring, non-eventful, and quiet…thank goodness!

Advertisements

1 Comment (+add yours?)

  1. LeeLeeBot
    Aug 28, 2014 @ 17:28:40

    I love your honesty and sense of humor. I am hoping for clear results on the lupus test for you. All the best!

    Reply

Leave a Reply

Fill in your details below or click an icon to log in:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out / Change )

Twitter picture

You are commenting using your Twitter account. Log Out / Change )

Facebook photo

You are commenting using your Facebook account. Log Out / Change )

Google+ photo

You are commenting using your Google+ account. Log Out / Change )

Connecting to %s

%d bloggers like this: